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Really proud of my friends living well with dementia at #ADI2014 Puerto Rico
29th International Conference of Alzheimer’s Disease International
Dementia: Working Together for a Global Solution
1-4 May 2014, San Juan, Puerto Rico
ADI and Asociacion de Alzheimer y Desordenes Relacionados de Puerto Rico invite representatives from around the world, from medical professionals and researchers to people with dementia and carers, all with a common interest in dementia.
The conference programme – details given on this website – has streams including research, advocacy and care.
I am particularly proud of my close friend, Kate Swaffer (@KateSwaffer).
Kate is in a volunteer advocacy position, also working as a consumer on the National Advisory Consumers Committee, and the Consumer’s Dementia Research Network.
She contributes so much value to the people who are lucky to know her.
Kate lives in Adelaide, Australia. She loves cats like me. She has a formidable interest and experience in many things such as academia, media, clinical quality, and cuisine. She happens to live with first-hand experience of living with a dementia, and is a sheer joy to learn off.
Dementia Alliance International is a non-profit group of people with dementia from the USA, Canada, Australia and other countries that seek to represent, support, and educate others living with the disease, and an organization that will provide a unified voice of strength, advocacy and support in the fight for individual autonomy and improved quality of life.
Their membership is open to anyone with any type of dementia. Click here to inquire about membership.
PHOTOS ALL BY KATE SWAFFER APART FROM THE ONES WITH KATE IN THEM
Kate sporting a very important message for those of us who are passionate about a person-centred approach promoting living well with dementia.
This philosophy does not give undue priority to a medical model which pushes drugs which currently have very modest effects, or certain vested interests.
Living well with dementia in the English jurisdiction is a policy plank I’ve extensively reviewed for the English jurisdiction here.
A wonderful picture of Kate and Gill (@WhoseShoes). I am very proud of them having made this global journey to Puerto Rico.
Thanks to Gill (@whoseshoes) for capturing the happiness of friends at my book launch for ‘Living well with dementia’
I don’t go to “trade fairs” where people display their latest ‘products’ for dementia. I am an outsider, and very happy to be so so.
But I do feel my book is having an impact slowly with the right people.
For example:
@a_carers_voice sitting in sunshine London garden reading @legalaware living well with dementia – what a read … Brilliant Shibley …
— Ann Pascoe (@a_carers_voice) March 16, 2014
and
@dementia_2014 utterly brilliant, very much reflects current thinking, covers a big topics succinctly.. enjoyed reading it
— Caroline Bartle (@3SpiritUKNZ) March 14, 2014
These are just some of the messages in the ‘little black book’ I was given at my book launch for ‘Living well with dementia’ (details here). Ones not shown have not been excluded out of any malice. I am hugely proud of people who kindly made it to Camden to celebrate my book on February 15th 2014. I am of course hugely indebted to Gill Phillips (@WhoseShoes) for presenting me with this ‘little black book’, which I promise to cherish forever. #KoalaHugs
I received a special book of good luck messages for my book launch. I really don’t deserve friends like @WhoseShoes. pic.twitter.com/3fQZVA7D3s
— shibley (@legalaware) March 16, 2014
One of the really special moments of my book launch was meeting @WhoseShoes‘ close friends David and Linda.
— shibley (@legalaware) March 16, 2014
This was a lovely message by David and Linda for my book launch. @WhoseShoes pic.twitter.com/zudB1uRBh2
— shibley (@legalaware) March 16, 2014
Really honoured Lee @dragonmisery made it to my book launch! Her ‘dementia challengers’ website is truly amazing. pic.twitter.com/6KwoRPDuYW
— shibley (@legalaware) March 16, 2014
@MrDarrenGormley is one of my amazing friends. He also totally ‘gets’ personhood. pic.twitter.com/uBgeHIR8EZ
— shibley (@legalaware) March 16, 2014
The amazing @RachelNiblock – grateful for all her brilliant insights into dementia and carers. pic.twitter.com/WOJrvq6nDw
— shibley (@legalaware) March 16, 2014
Definitely a case of #koalahugs from the unique @KateSwaffer – my soulmate! pic.twitter.com/OzSZfkq8B7
— shibley (@legalaware) March 16, 2014
This made me laugh so much from @SarahReed_MHR – thx to sarah and @WhoseShoes for this lovely msg about my book! pic.twitter.com/xoGN5pzfDw
— shibley (@legalaware) March 16, 2014
Am chuffed to bits to have included @bethyb1886‘s outstanding work in my book on living well with dementia. pic.twitter.com/UPMRMHZdur
— shibley (@legalaware) March 16, 2014
With incredible ppl like @lucyjmarsters at the coalface of dementia care I am hugely optimistic. pic.twitter.com/c25aPL8IVX
— shibley (@legalaware) March 16, 2014
Incredibke that @mkilll completed a really long journey to be at my book launch on living well with dementia. pic.twitter.com/lLXqKm6qNz
— shibley (@legalaware) March 16, 2014
Simply amazing from Jo. pic.twitter.com/5z5s7S9tab
— shibley (@legalaware) March 16, 2014
Indeed here’s to ‘living well with dementia’ @sky_larking pic.twitter.com/9pFUY9HVQB
— shibley (@legalaware) March 16, 2014
I love @HLCLC – who epitomise the ethos of living well with dementia pic.twitter.com/Eh9hJqCbtH
— shibley (@legalaware) March 16, 2014
@helenbevan for a long time has been a massive influence as an external radical in living well with dementia. pic.twitter.com/AXq6iRsiHP
— shibley (@legalaware) March 16, 2014
And the last word is left to #KoalaHugs: