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It’s convenient if you think it’s an image thang, but Labour needs answers to big problems



Head in Hands

Miliband has indeed called the right shots on certain issues, such as phone hacking and energy bills, but he is wrong to think all of his woes are due to a fixation with image.

This is Ed Miliband who recently posed with a copy of the Sun newspaper remember, despite rather vociferous opposition of the Liverpool MPs in the aftermath of the Hillsborough disaster.

It’s pretty likely now that the Conservatives have screwed up in a sufficiently large number of areas for them not to be able to win an overall majority on May 8th 2015. This all leaves Labour looking as if it will be the largest party at least. The indictment list for the Coalition is massive: real problems in access to justice through the decimation of law centres, operational failures in access to acute medicine, the distress caused to disabled citizens through their withdrawal of disability benefits, and so it goes on.

And indeed it’s pretty likely now both the Conservatives and the Liberal Democrats have done enough to lose the next general election.

But Miliband’s fixation on image is odd. It’s odd particularly he has always claimed he never reads the papers, like an aloof academic who never reads bad reviews of his work. The “I am not worried about my image” story presents an inherent paradox that Miliband is intensely worried about his image. But he should be worried about other things.

Labour is looking, policy-wise, in healthy shape. The UK Labour Party is relatively united, and the list of policy proposals look coherent.

But the Labour Party, like all parties, have ‘questions to answer’. It needs to answer whether it would be prepared to safeguard the NHS budget as the inequality gap gets bigger. If it is indeed the case that Greg Dyke, who considers himself reasonably well off, is happy to pay a larger amount of taxes to not have a NHS on its knees, should Labour be bringing that discussion openly to the public?

Labour says it cannot do much about the TTIP investor state dispute settlement negotiations as they’re being done in private, but Labour still gives an impression of being led by events not being in control of them. Likewise it is committed to negotiating a new settlement for PFI literally, not solely the problem of the Labour Party, but PFI does not seem to be a discussion out in the open. It clearly is not a niche subject when it can affect the reconfiguration of local hospitals.

And the general public are not convinced about the NHS being run on the model of a supermarket. Members of the public include disgruntled former employees of the NHS who have found the culture oppressive and stifling, with abuse of power by people in authority. And nothing much seems to change.

Ultimately there is always enough money for wars, and inquiries into war, and you never hear of the Prime Minister saying we can’t intervene because we’ve overspent our budget. People who used to vote Labour want some sort of ideological reassurance that the NHS will not be sold off to the highest bidder, and our utilities won’t be owed by foreign oligarchs. Yes, the left is capable of “doing” patriotism too.

For the record, I have never been one to dismiss the National Health Action Party or Keep Our NHS Public as cranky pressure groups who have no credibility in their mission. They are speaking up for massive faultlines in our NHS policy, and, whilst Labour is clearly speaking out against the current Government, many former Labour voters simply put their face in their palm when Miliband dismisses the problem as image.

It is not.

My research survey on perceptions and image of dementia following the G8 dementia summit



This study can only take place subject to ethical approval from a local COREC. Whilst there is no wish to collect data apart from anonymously, and whilst we will ensure governance of the study for data collection, information given to participants, and whilst we will seek permission to take part (and consent), it’s imperative that a senior investigator on the team (not me) is accountable for the findings. This will be essential if we are later to publish any findings publicly in abstract form or beyond.

I am intrigued about personal reactions to the #G8dementia summit, regarding some perceptions and the image of dementia, and whether the summit addressed any of that.

I’m also interested in seeing whether the summit had a differential effect on those persons living with dementia, and those without (including carers).

There are 28 questions.

Some invite open-ended answers.

There’ll therefore be three groups:

Group A    Persons living with dementia

Group B   Carers

Group C   Not groups A or B

I’ll make three links to these 3 surveys available in time.

I’d be interested in any changes to the questions, or any additions to this list of questions. I will be also collecting very basic demographic data in my surveys. Please use the comments section below this post.

THE SURVEY

This survey is about your perceptions and image of the G8 Dementia Summit which took place in December 2013.

This survey is completely anonymous.

I’d be very grateful if you could answer as best as you can.

The questions have no right/wrong answers.

The survey is in three sections: Part A, B and C.

Thanks!

PART A

Questions 1 – 19

1. Did you see any of the news coverage on the television about the #G8dementia Conference last year?

Yes

No

2. Did you hear any of the news coverage on the radio about the #G8dementia Conference last year?

Yes

No

3. Did you read any of the news coverage on the internet about the #G8dementia Conference last year? This could include any references to the event in the social media, such as Facebook or Twitter.

Yes

No

4. Were you aware of a potential significance of dementia in the future?

Yes

No

5. Do you consider the response against dementia to be a ‘fight’?

Yes

No

6. Do you consider the numbers of people to be living with dementia to be a ‘explosion’ in the near future?

Yes

No

7. Do you consider yourself to be ‘shocked’ by dementia?

Yes

No

8. a) Do you think it’s right to compare dementia to HIV/AIDS?

Yes

No

Not sure

b) Please provide further details, particularly if you were unable to produce a clear ‘yes’ or ‘no’ answer.

[open ended]

9. a) Do you think it’s right to compare dementia to cancer?

Yes

No

Not sure

b) Please provide further details, particularly if you were unable to produce a clear ‘yes’ or ‘no’ answer.

[open ended]

10. a) Do you consider the response against dementia to be a ‘war’?

Yes

No

Not sure

b) Please provide further details, particularly if you were unable to produce a clear ‘yes’ or ‘no’ answer.

[open ended]

11. a) Do you consider the response against dementia to be a ‘flood’, or something against which ‘the tide must be turned’?

Yes

No

Not sure

b) Please provide further details, particularly if you were unable to produce a clear ‘yes’ or ‘no’ answer.

[open ended]

12. Did the #G8dementia summit evoke in you a feeling of being ‘fearful’ about dementia?

Yes

No

13. Did the #G8dementia summit evoke in you a feeling of being ‘excited’ about social care for dementia?

Yes

No

14. Did the #G8dementia summit evoke in you a feeling of being ‘excited’ about the possibility of a breakthrough in a cure for dementia?

Yes

No

15. Did the #G8dementia leave you clearer about the relationship between Alzheimer’s disease and dementia?

Yes

No

16. a) The #G8dementia sought to improve research and a lot of this focussed on ‘personalised medicine’. Did you feel this was explained to you so that you understand it better following the G8?”

Yes

No

b) Please elaborate if you wish.

[open ended]

17. The research community is absolutely clear about the distinction between normal ageing and disease: agree or disagree?

Yes

No

18. Do you feel that #G8dementia addressed the notion that people do not always have the right knowledge and information to manage their condition?

Yes

No

19. Do you feel that #G8dementia promoted ‘living well with dementia’, for example through health innovations?

Yes

No

PART B

Question 20

20. How well do you think the #G8dementia Conference did in addressing the needs of the following groups of the following people?

[Answer from 0 (not at all) to 5 (completely)]

Researchers
Pharma Industry
Persons with dementia
Carers of persons with dementia
Journalists and the media
Politicians
Big charities
Small charities

PART C

Questions 21 – 28

21. What do you believe the #G8dementia summit set out to achieve? Did the organisers achieve in their aims?

[open ended]

22. Do you have any concerns about the way the #G8dementia summit was conducted?

[open ended]

23. What do you expect the #G8dementia summit, in fact, will achieve ultimately?

[open ended]

24. Do you think the #G8dementia helped decrease the stigma which has been associated with dementia?

[open ended]

25. Do you feel the public is generally united in their perceptions of dementia, or do you there exists a diverse range of different perceptions?

[open ended]

26. Do you think negative perceptions of perception exist by members of the public? Why or why not?

[open ended]

27. Are there any positive perceptions of perception by members of the public?

[open ended]

28. Finally, do you have any views about what the aim or purpose of the #G8dementia summit was? Do you know how it was instigated, and by whom?

[open ended]

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