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My name is Shibley, and I’m addicted to buying my own book ‘Living well with dementia’



I’ve sat in more recovery sessions than you’ve had hot dinners….

.. possibly.

So I get a surge of dopamine whenever I receive yet more copies of my book from Amazon.

Worth every penny.

Packaging

I am Shibley. and I’m addicted to buying my own book.

in a circle

But I also have a weird habit of getting people I know to sign my copy of my book.

I get withdrawal symptoms from not having enough copies.

I also get tolerance – I need to have an increasing number of copies to get the same “kick” from my book.

Thanks enormously to the following ‘well wishers’, though, who have signed my book.

A huge thanks to Gill  (@WhoseShoes) for her unflappable support of me and my book.

Here’s Gill’s blogpost.

And here we are!

GS

I felt very happy to give a copy of my book to Prof Sube Banerjee, newly appointed Chair of Dementia at Brighton and Sussex Medical School. Sube has in fact been the lead for England for dementia – his work is quoted in my book, and I think he’s made an enormous contribution to the living well with dementia literature.

Sube

And what does the future hold for ‘living well with dementia’?

Other ‘signatories’ include:

@RichardatKF

Richard Humphries

@lisasaysthis

I’ve known Lisa for yonks on Twitter. Lisa is one of the few people who’ve supported me through the bad times too.

Lisa

@crouchendtiger7

CrouchEndTiger

@ermintrude2

ermintrude3

@mrdarrengormley

Darren

But now you can ‘Look Inside’ to get a flavour of my book – as there is now a Kindle edition (thanks to Alice in my book publishers @RadcliffeHealth)

Here it is on Amazon.

Look inside

Here is a sample chapter from my book ‘What is living well?’

‘Living well’ is not some bogus mantra for the hell of it. It is an ideological standpoint which serves to promote the dignity of our fellow citizens who happen to also have a clinical diagnosis of dementia.

And here are the “beautiful people” who came to my book launch at the Arlington Centre, Camden, one afternoon in February. I can’t believe that this wasn’t even a month ago now!

Book launch

One of the happiest days, as well, was giving Joseph a copy of my book as a gift.

Joseph
Joseph was in fact my carer when I could hardly walk or talk, when I was in physical recovery from meningitis on ITU (where I was unconscious in 2007).

And those were the days…

Royal Free

And THIS is the famous poppy.

This picture was taken by Twitter pal, @charbhardy, first amongst equals in the #dementiachallengers.

the famous poppy

After I said I was buying my own copies, @KateSwaffer asked:

Klaws

But Kate has read a copy of my book from cover to cover:

And as @Norrms says – how can ‘living well with dementia’ fail?

An academic guide to the regulation of Monitor, the NHS sector regulator, itself



This is not a legal opinion, but just a brief summary of some of the practicalities and law about complaining about Monitor, the NHS sector regulator, through various channels.

The functions of Monitor itself

A summary of the new role of Monitor is : http://www.monitor-nhsft.gov.uk/sites/all/modules/fckeditor/plugins/ktbrowser/_openTKFile.php?id=6211

It is a public body, with derived powers from statute: licensing NHS FTs, enforcing fair competition, intervening in failing trusts, promoting equality in healthcare, promoting quality and economic efficiency, prevention and treatment of illness and disease, promoting public health (see s. 62 of Health and Social Care Act) Monitor is described in full s.61-71 in the now famous Part 3 of the Health and Social Care Act (2012). Crucially, under s.71 the Secretary of State has powers to intervene if the failing is “significant” though this is not defined fully by case law yet.

Pivotal in the new Health and Social Care Act is Monitor, which has a number of duties enshrined in law. The history of the development of Monitor’s functions is well described elsewhere, for example here by Dr Anna Dixon of the King’s Fund.

How to complain about Monitor – two routes being Monitor itself, and the Parliamentary Healthcare Ombudsman

The Parliamentary Healthcare ombudsman website http://www.ombudsman.org.uk/make-a-complaint/how-to-complain gives useful advice on how to complain about health regulatory bodies including Monitor. Monitor itself produces guidance as how to pursue a complaint about Monitor itself here. It would be normal to pursue a complaint through Monitor’s internal channels first for complaints about NHS Trusts or Monitor.

Judicial review – this is supposed to be a remedy of last resort after internal review processes, appeals, etc.

You are supposed to consider alternative dispute resolution mechanisms (e.g. negotiation, Ombudsman, independent consultation, mediation) (these are outlined in the pre-action protocol). If you haven’t attempted these, you are likely to have to explain why to the Courts in any application of judicial review. It appears that you may be able can take an action against Monitor, irrespective of the healthcare ombudsman or going through Monitor channels, through judicial review, if there are appropriate grounds.

The website http://www.publiclawproject.org.uk is a very good introduction to how to take an action for judicial review against a public body. Unfortunately, due to the shake-up of legal aid etc. and the changes in the Legal Services Commission, this project does not exist for the timebeing. To have benefitted from their help, you would have need to have been approached by a solicitor in person, law centre, or ‘other interested body’.

Some very useful resources are given on a page entitled “information leaflets” – http://www.publiclawproject.org.uk/AdviceGeneral.html Resources include:

DISCLAIMER: 

I hope you find this information useful. It is not meant to be legal advice, and is simply an academic summary. This website does not take any responsibility for the accuracy of information therein. However, we would be grateful for any opinions.

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